World Myositis Day

Representatives of various international myositis groups and – organizations from, Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and United States of America have jointly decided to establish the World Myositis Day in 2023.

On the WMD, special attention should be paid to the disease of myositis. Myositis – which can affect adults and children – is a progressive inflammatory muscle disease leading to weakness, muscle loss, fatigue, and sometimes to skin, heart and lung involvement. Myositis is a pooling of different disease and/or symptoms. The public should be made aware of myositis and the disease should be brought into the focus of research and medicine.

This year we are celebrating World Myositis Day for the first time. Various international myositis groups and organizations are organizing different activities on this day to draw more attention to myositis (see the list below).

Czech Myositis Working Group

• https://facebook.com/myozitidy/
• https://facebook.com/revmaliga/
• https://www.facebook.com/events/1674342010008960/?acontext=%7B%22event_action_history%22%3A%5b%5d%7D

German Myositis Group

• https://www.dgm.org/news/world-myositis-day-2024

Swedish Myositis Working Group

• https://myosit.reumatiker.se/blogg/patientdag

The Myositis Association – TMA (USA)

• https://www.myositis.org/myositis-library/myositis-awareness-month/world-myositis-day/

The Myositis Association – Australia (TMAA)

• https://myositis.org.au/world-myositis-day-resources/

ERN-ReCONNET – Webinar

• Multidisciplinary Diagnosis And Multidisciplinary Teams Treatment In Idiopathic Inflammatory Myopathies (IIM)

 -> List will be continued.

Share this info and join us in celebrating World Myositis Day on the 21st of September 2024!