World Myositis Day

Representatives of various international myositis groups and – organizations from, Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and United States of America have jointly decided to establish the World Myositis Day in 2023.

On the WMD, special attention should be paid to the disease of myositis. Myositis – which can affect adults and children – is a progressive inflammatory muscle disease leading to weakness, muscle loss, fatigue, and sometimes to skin, heart and lung involvement. Myositis is a pooling of different disease and/or symptoms. The public should be made aware of myositis and the disease should be brought into the focus of research and medicine.

2024 we celebrated the World Myositis Day for the first time. Various international myositis groups and organizations organized different activities on this day to draw more attention to myositis (see the list below of planned and performed activities).

Planned:

Czech Myositis Working Group

• https://facebook.com/myozitidy/
• https://facebook.com/revmaliga/
• https://www.facebook.com/events/1674342010008960/?acontext=%7B%22event_action_history%22%3A%5b%5d%7D

Swedish Myositis Working Group

• https://myosit.reumatiker.se/blogg/patientdag

The Myositis Association – TMA (USA)

• https://www.myositis.org/myositis-library/myositis-awareness-month/world-myositis-day/dag

The Myositis Association – Australia (TMAA)

• https://myositis.org.au/world-myositis-day-resources/dag

Performed: 

Dutch IBM Foundation

• https://www.spierziekte-ibm.nl/geslaagde-eerste-editie-loop-voor-ibm/

German Myositis Group

• https://www.dgm.org/news/world-myositis-day-2024

Swedish Myositis Working Group

• How we celebrated the WMD in 2024 Sweden

ERN-ReCONNET – Webinar

• Multidisciplinary Diagnosis And Multidisciplinary Teams Treatment In Idiopathic Inflammatory Myopathies (IIM)

Share the information about the World Myositis Day and join us for WMD on 21st of September 2025!